National Links
General
Memory Loss
Helpguide.org
http://helpguide.org/life/prevent_memory_loss.htm
Alzheimer’s Disease (AD)
Alzheimer’s Association National Office
225 North Michigan Avenue Fl. 1
Chicago, IL 60601
www.alz.org
Alzheimer’s Foundation
322 8th Avenue 7th Floor
New York, NY 10001
www.alzfdn.org
International Alzheimer’s Organization, Inc.
1-647-346-6889 (Canada)
www.inalor.org
Alzheimer’s Disease International
64 Great Suffolk Street
London SE1 0BL
UK
+44 20 79810880
www.alz.co.uk
Alzheimer Europe
145, route de Thionville
L-2611 Luxenbourg
+352 29 79 70
www.alzheimer-europe.org
Fisher Center for Alzheimer’s Research Foundation
One Intrepid Square
West 46th Street & 12th Avenue
New York, NY 10036
(800) 259-4636
www.alzinfo.org
Alzheimer’s Reading Room
www.alzheimersreadingroom.com
Alzheimer’s Disease Health Center
www.webmd/alzheimers/news
Johns Hopkins Health Alerts
(800) 829-0422
www.johnshopkinshealthalerts.com
Alzheimer’s Research Forum
www.alzforum.org
Medic Alert and Safe Return
Medic Alert Foundation
2323 Colorado Avenue
Turlock, CA 95382
(888) 633-4298
www.medicalert.org/saferrturn
Alzheimer’s Foundation of America
322 Eighth Avenue 7th Floor
New York, NY 10001
(866) 232-8484
www.afateens.org AFTA – Teens
www.alzfdn.org
Alzheimer’s Disease Information for Children and Teens
National Institute on Aging
Building 31 Room 5C27
31 Center Drive MSC 2292
Bethesda, MD 20892
(301) 496-1752
www.nia.nih.gov
Alzheimer’s Disease Organizations
National Institute of Neurological Diseases and Stroke
PO Box 5801
Bethesda, MD 20824
(800) 352-9424
www.ninds.nih.gov
Alzheimer’s Disease Education and Referral Center
National Institute on Aging
P.O. Box 8250
Silver Spring, MD 20907-8250
(301) 945-3311
adear@nia.nih.gov
National Organization for Rare Disorders (NORD)
P.O. Box 1968
55 Kenosia Avenue
Danbury, CT 06813-1968
(203) 744-0100
orphan@rarediseases.org
http://www.rarediseases.org
Family Caregiver Alliance/ National Center on Caregiving
180 Montgomery Street
Suite 900
San Francisco, CA 94104
(415) 434-3388
http://www.caregiver.org
National Family Caregivers Association
10400 Connecticut Avenue
Suite 500
Kensington, MD 20895-3944
(800) 896-3650
http://www.thefamilycaregiver.org
Lewy Body Dementia Association
912 Killian Hill Road, S.W.
Lilburn, GA 30047
(404) 935-6444 Helpline: (800) 539-9767
http://www.lbda.org
Alzheimer’s Disease Care
Many Interesting Articles
www.alzheimers-disease-care.com
Parkinson’s Disease (PD)
The Michael J. Fox Foundation for Parkinson’s Research
Church Street Station
PO Box 780
New York, NY 10008
(800) 708-7644
www.michaeljfox.org
Muhammad Ali Parkinson’s Center
Barrow Neurological Institute
350 West Thomas Rd
Phoenix, AZ 85013
Phone: 602-406-6281 or 1-800-227-7691
http://www.thebarrow.org/Neurological_Services/Muhammad_Ali_Parkinson_Center/index.htm
American Parkinson Disease Association
135 Parkinson Avenue
Staten Island, NY 10305-1425
(718) 981-8001 (800) 223-2732
http://www.apdaparkinson.org
Parkinson Alliance
P.O. Box 308
Kingston, NJ 08528-0308
(609) 688-0870 (800) 579-8440
http://www.parkinsonalliance.org
Parkinson’s Action Network (PAN)
1025 Vermont Ave., NW
Suite 1120
Washington, DC 20005
(800) 850-4726 (202) 638-4101
http://www.parkinsonsaction.org
The Parkinson’s Institute and Clinical Center
675 Almanor Avenue
Sunnyvale, CA 94085
(408) 734-2800 (800) 655-2273
http://www.thepi.org
WE MOVE (Worldwide Education & Awareness for Movement Disorders)
5731 Mosholu Avenue
Bronx, NY 10024
(347) 843-6132
http://www.wemove.org
National Parkinson Foundation
1501 N.W. 9th Avenue
Bob Hope Road
Miami, FL 33136-1494
(305) 243-6666 (800) 327-4545
http://www.parkinson.org
Parkinson’s Disease Foundation (PDF)
1359 Broadway
Suite 1509
New York, NY 10018
(212) 923-4700 (800) 457-6676
http://www.pdf.org
Parkinson’s Resource Organization
74-478 Highway 111
No 102
Palm Desert, CA 92260
(760) 773-5628 (877) 775-4111
http://www.parkinsonsresource.org
Bachmann-Strauss Dystonia & Parkinson Foundation
Fred French Building
551 Fifth Avenue, at 45th Street
Suite 520
New York, NY 10176
(212) 682-9900
http://www.dystonia-parkinsons.org
Healing Well
Community. Support. Resources.
www.healingwell.com/pages/Parkinsons_Disease/Organizations
Finding Dulcinia
Dulcinea Media, Inc.
205 Sherman St.
Lynbrook, NY 11563
(917) 597-3815
www.findingdulcinea.com/guides/Health/Parkinsons-Disease.pg_02.html
American Parkinson’s Disease Association
135 Parkinson Avenue
Staten Island, NY 10305
(800) 223-2732 or (718) 981-8001
www.apdaparkinson.org
National Young Onset Center
25 North Winfield Road
Winfield, IL 60190
(630) 933-4380
www.youngparkinsons.org
Amytropic Lateral Sclerosis (ALS)
National Institute of Neurological Disorders and Stroke
NIH Neurological Institute
P.O. Box 5801
Bethesda, MD 20824
(800) 352-9424 or (301) 496-5751
www.ninds.nih.gov/disorders/amyotrophiclateralsclerosis
Human Brain and Spinal Fluid Resource Center
Neurology Research (127A)
W. Los Angeles Healthcare Center
11301 Wilshire Blvd. Bldg. 212
Los Angeles, CA 90073
310-268-3536
24-hour pager: 310-636-5199
http://www.loni.ucla.edu/~nnrsb/NNRSBtop
ALS Association
1275 K Street, N.W.
Suite 1050
Washington, DC 20005
(202) 407-8580
advocacy@alsa-national.org
Muscular Dystrophy Association
3300 East Sunrise Drive
Tucson, AZ 85718-3208
(520) 529-2000 (800) 572-1717
http://www.mda.org
ALS Therapy Development Institute
215 First Street
Cambridge, MA 02142
(617) 441-7200
http://www.als.net
Les Turner ALS Foundation
5550 W. Touhy Avenue
Suite 302
Skokie, IL 60077-3254
(888) ALS-1107 (847) 679-3311
http://www.lesturnerals.org
Project ALS
3960 Broadway
Suite 420
New York, NY 10032
(212) 420-7382 (800) 603-0270
http://www.projectals.org
ALS Association
Headquarters & Executive Office
1275 K Street NW
Suite 1050
Washington, DC 20005
Phone: (202) 407-8580
www.alsa.org
Mayo Clinic
Amyotrophic Lateral Sclerosis
www.mayoclinic.com/health/amyotrophic-lateral-sclerosis/DS00359
World Federation of Neurology
Amyotrophic Lateral Sclerosis
Research Group on Motor Neuron Diseases
www.fnals.org
American Speech, Language and Hearing Association
Amyotrophic Lateral Sclerosis
www.asha.org/public/speech/disorders/ALS.htm
Myasthenia Gravis (MG)
National Institute of Neurological Disorders and Stroke
NIH Neurological Institute
P.O. Box 5801
Bethesda, MD 20824
(800) 352-9424 or (301) 496-5751
www.ninds.nih.gov/…/myasthenia_gravis/detail_myasthenia_gravis.htm
Myasthenia Gravis Foundation of America, Inc.
www.myasthenia.org
Muscular Dystrophy Association – USA
National Headquarters
3300 E. Sunrise Drive
Tucson, AZ 85718
(800) 572-1717
www.mdausa.org/disease/mg.html
Huntington’s Chorea Disease (HD)
Huntington’s Disease Society of America
505 Eighth Avenue, Suite 902
New York, NY 10018
(212) 242-1968
(800) 345-HDSA (4372)
www.hdsa.org
Huntington’s Disease – Diagnosis and Treatment Options
Mayo Clinic
13400 East Shea Boulevard
Scottsdale, AZ
(480) 301-8000
www.mayoclinic.org
The Physician’s Guide to The Management of HD
http://endoflifecare.tripod.com/huntdiseasefaqs/id46.htm
Drug Treatment of Huntington’s Chorea
National Center for Biotechnology Information
National Library of Medicine
Building 38A
Bethesda, MD 20894
(301)496-2475
www.ncbi.nlm.nih.gov/pmc/articles/PMC1925892/
Multiple Sclerosis (MS)
National Multiple Sclerosis Society
1100 New York Ave.,N.W.
Suite 660
Washington, DC 20005
(800( 344-4867
www.nationalmssociety.org
Multiple Sclerosis Foundation
6520 North Andrews Avenue
Fort Lauderdale, Florida 33309-2130
(800) 225-6495
www.msfacts.org
Multiple Sclerosis Association of America (MSAA)
706 Haddonfield Road
Cherry Hill, NJ 08002
Toll-free: (800)532-7667
(856) 488-4500
www.msassociation.org
The MS Awareness Foundation
Zone Edit, LLC
P.O. Box 821067
Vancouver, WA 98682
www.msawareness.org
A Visual Guide to Multiple Sclerosis / Web MD
www.webmd.com/multiple-sclerosis/slideshow-multiple-sclerosis-overview
Multiple Sclerois.com
Your Resource for MS
Bayer HealthCare Pharmaceuticals Inc
Wayne, NJ 07470
www.multiplesclerosis.com/us/index.php
Multiple Sclerosis Association of America (MSAA)
706 Haddonfield Road
Cherry Hill, NJ 08002
(800) 532-7667, extension 154
www.msassociation.org
All About Multiple Sclerosis
(800) 344-4867
www.mult-sclerosis.org
MS Awareness Foundation
Zone Edit, LLC
P.O. Box 821067
Vancouver, WA 98682
www.msawareness.org
Multiple Sclerosis Information
MS Log.com
www.msnet.org